International Conference on
Palliative Dementia Care, Belfast,
8th – 10th May 2019

Full Programme Available

7.30 – 9.00 Registration
8.00 – 9.00 Dementia Friends Training  (Ballroom 4/5 )
Playlist For Life  Workshop  (Piano Restaurant)
09:00 Introduction/Welcome
Heather Weir, CEO, Northern Ireland Hospice
9.05 Opening Remarks
Richard Pengelly, Permanent Secretary for Health NI
9.15 – 9.30 Setting the scene: Voice and Influence from Patient with Dementia

9.30 – 10.00

10.00 – 10.30

Keynote 1A Palliative Dementia Perspective: Why Get Married?
Q&A Session hosted by Sir Martyn Lewis with Heather Weir, CEO NI Hospice
Prof. Colm Cunnigham, HammondCare Australia

Keynote 1B Why is Palliative Care Important in Dementia Care?
Prof. Colm Cunningham, HammondCare Australia

10.30 – 11.00 Break
11.00 – 12.00

Keynote 2A: Hospice Enabled Dementia Partnerships: Northern Ireland Hospices Journey
Jo Ballentine, Lecturer PCLA, HNS, Dementia, NI Hospice

Keynote 2B: Evaluation Report: Hospice Enabled Dementia Partnerships
Professor Joanne Reid, Queens University Belfast

12.00 – 12.30 Keynote 2C Panel discussion: Living and Dying Well with Dementia – What is Happening
Globally re Palliative Dementia Approach
Tracey Bleakley, CEO Hospice UK
Prof Colm Cunningham, HammondCare Australia
Prof. Jenny van der Steen
12.30 – 13.00 Keynote 2D Ethical considerations of Digital Wearables in Palliative Dementia Care
Professor Shailey Minocha, Open University
13.00 – 14.00 Lunch Viewing of Exhibition Space and Poster Presentations
Lunchtime discussion session: Book Launch HammondCare “Talking Sense” (Piano Restaurant)
14.00 – 14.15 After lunch Engagement/Energiser
14.15 – 15.30

Keynote 3: Goals of Care Using a Palliative Approach to Care, Anytime, Any Place, Anyone

3A: Care Pathways Used Globally in Palliative/Dementia Care and Their Challenges
Prof. Jenny van der Steen

3B: EMBDED-care programme
Catherine Evans, Kings College London

3C: Admiral Nursing: a case management approach to palliative care in dementia
Zena Aldridge, Dementia UK

15.30 – 16.00 Palliative Dementia Care: Connecting and realising value through partnership with people
Prof. Charlotte McArdle, CNO Deptarment of Health N.Ireland
16.00 – 16.30 Tea, Coffee and Exhibition Break
16.30 – 17.30

SESSION 1:
“It Ain’t What You Do It’s the Way That You Do It!”- End of Life Care in Dementia

CHAIR: Dr Clare White, Consultant Palliative Care NIH

Lead Speaker – Kevin Brazil
Supporting family carer decision-making at the end of life: The Family Carer Decision Support Intervention

Kelly Arthurs
Building Capability, Confidence and Fostering Partnerships in Residential Aged Care: Improving End of Life Care

Diarmuid O’Coimin
Future Care Planning: Insights From People With Dementia and Their Family Members

SESSION 2:
“I Can Make You Feel Good” – Use of Alternative therapies for symptom management in Palliative Dementia

CHAIR: Prof. Joanne Reid, QUB

Lead Speaker – Jo Hockley
Namaste

Mary Rose Scott
Use of Complementary Therapy in Palliative Dementia Care

Sharon Tolman
Service Innovation: How can Hospices Reach More People With Dementia?

SESSION 3:
“I Got You Babe” – Informal and Family Carer Support

CHAIR: Dr. Esther Beck, UUJ

Lead Speaker – Anna Gaughan, TIDE
Engagement with Carers

Emma McClelland
Dementia Navigator Service

Joanna Jones and Philomena Murphy
“Stand By Me” Supporting Carers of People With Dementia in a Pilot Therapeutic Group Programme

Close Day One
8.00 – 9.00 Registration
8.00 – 9.00 Dementia Friends Training (Ballroom 4/5)
Playlist For Life  Workshop (Piano Restaurant)
09:00 Welcome
Sarah Travers
9.05 Opening Remarks
Prof. Charlotte McArdle
Micheal McBride
9.15 – 9.30 Dementia Carer Persepctive. TIDE  Carers
Anna Gaughan, TIDE
9.30 – 11.00

Keynote 4 Choice

4A: The experience of choice in health care: A personal story
Agnes Houston, HammondCare

4B: Palliative Care in Dementia: the role of Advance Care Planning
Prof. Luc Deliens, VUB

4C: The Elephant in the Room
Dr. Karen Harrison-Dening

4D: “The Absent Voice” – the reality of advance care planning for people living with dementia,
living  in long term care settings
Dr. Esther Beck, UUJ

4E: Legal Aspect and Considerations of Advance Care Planning in Dementia
Cathy Warnock, Solicitor Edwards & Co

11.00 – 11.30 Break
11.30 – 12.30

SESSION 4:
“Say You Say Me”  – Advanced Care Planning

CHAIR: Dr. Gerry Millar

Sharon Kaasalainen
Evaluating the Feasibility & Acceptability of the Conversation Starter Kit Tool for Residents with Dementia

Dr. Julie Christie
Palliative Care and the Person With Dementia: Is There a Place for Resilience?

Sarah Harries
Advance Care Planning and Lasting Power of Attorney: The Race Against Time

SESSION 5:
“Things Can Only Get Better” – Palliative Dementia Education

CHAIR: Heather Weir, NIH

Sue Foster
NI Hospice Holistic Certificate in Palliative Dementia Care Distance Learning Programme

Cathy Payne
Supporting Palliative Care Awareness and Delivery in Nursing Homes Through Collaborative Learning: Project ECHO AIIHPC

Michelle McDuff
“How Can You Really See me if You Don’t Get to Know me?” Dementia Champion Programme

SESSION 6:
“Feeling Good” – Innovative Approaches Symptom Management in Palliative Dementia

CHAIR: Dr Alan McPherson, NIH

Frances Duffy
CLEAR Dementia Care ©: Supporting Carers to Understand Behaviour and Reduce Distress

Deirdre Harkin
When the Marriage of Dementia and Palliative Care Doesn’t Work out- It can be Painful!

Susan Gibson
Namaste Care Programme: Giving Carers a Confident Voice and Enriching end of Life Experience

12.15 – 13.15 Lunch: Viewing Exhibition space and Poster Presentation
Lunchtime Discussion: My Life My Way Workshop – living well with dementia as part of my community
This session is sponsored by AgeNI
13.30 – 14.00 “Soundtrack of your Life” – Using Playlist to improve person centred care
Sarah Metcalfe, CEO Playlist for Life
14.00 – 14.45 Keynote 5: Leadership for Change, Building Capacity Through Innovation – “Leap of Faith Moments”
Bernadine McCrory, Director, Alzheimer Society NI
Eddie Lynch, COPNI
Break to Change Rooms
14.50 – 15.50

SESSION 7:
“Holding Out For A Hero” –  Innovations in Palliative Dementia Care

CHAIR: Dr Gillian McPherson, Consultant Psychiatrist, Belfast Trust

Caity Roleston
Do the Welsh Have it? Evaluating a Bereavement Service Supporting People Bereaved by Dementia

Rosalie Kuyvenhoven
How to Arrange Dementia Friendly Funerals

Caroline Abbott
The Effectiveness of a Global Positioning System for Someone with Dementia to Maintain Independence

SESSION 8:
“Chain Reaction” – Dementia Design

CHAIR: Jo Ballentine, NI Hospice

Professor Mary Marshall – HammondCare
Designing for Complexity

Bronagh Lynch, Consarc Design
Building the New NI Hospice to a Dementia Design

Florence Sharkey
The Impact of a Virtual Reality Training Programme on Health Professionals’ Knowledge, Understanding & Empathy

SESSION 9:
“It Started With a Kiss” – Partnership Approach in Care

CHAIR: Karen Charnley AIIHPC

Deirdre Doherty
There’s no Place Like Home: Compassionate Neighbours Reach Out Scheme

Claire Garley
Volunteering in a Hospice as a Person Living With Dementia: A Personal Story

Julie Skelton
A Video Library for Unpaid Carers

15.50 – 16.00 Break to Change Rooms
16.00 – 16.30 Panel Discussion: Theme, Future of Palliative Dementia Care, How to Stay Happily Married.
16.30 – 16.35 Final Keynote “Message to leave you with”

Programme At a Glance

Wednesday 8th May
Morning
Exhibition Set Up
Afternoon
Exhibition Set Up
Registration Open 15:00-18:00
Evening
Drinks Reception
City Hall Belfast
Thursday 9th May
Morning
Registration
Welcome
Keynotes
Panel Discussion
Parallel Sessions
Afternoon
Keynotes
Interactive Sessions
Parallel Sessions
Panel Discussions
Evening
Gala Dinner
Europa Hotel
Friday 10th May
Morning
Keynotes
Interactive Sessions
Panel Discussion
Parallel Sessions
Afternoon
Keynotes
Panel Discussion
Parallel Sessions
Evening
Depart

COUNTDOWN TO ICPDC

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